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Charities & Schools

Jnetics


 

 

Jnetics is the only charity that is dedicated to improving the prevention and management of Jewish genetic disorders in the UK. 

 

Jnetics aims to eradicate severe recessive Jewish genetic disorders (JGDs) from the UK Jewish community. These are extremely debilitating, often life shortening conditions that disproportionately affect people with Ashkenazi Jewish origin. Although they have no known cure, these disorders are in fact entirely preventable via carrier screening.

Screening identifies if a person is at risk of passing on a severe, recessive JGD and enables them to manage that risk and in turn have healthy children.

Jnetics, in partnership with the NHS, offers carrier screening for 9 of the most severe recessive JGDs. Screening is available to anyone aged 16+, with at least 1 Ashkenazi Jewish grandparent via the Jnetics Clinic based at Barnet Hospital or the GENEius programme.

Launched in 2017, 'GENEius' targets young Jewish adults in 3 main groups; Year 12 students, university students, and couples going through the synagogue pre-marriage process. It is a pioneering education and screening initiative in which participants are educated about JGDs and the importance of screening in their prevention and then offered the opportunity to take part in accessible and responsible carrier screening.

In addition, Jnetics' is involved in community awareness-raising awareness and signposting the best available information, services and support for JGDs.

 

To find out more about the GENEius visit www.geneius.org or for details about the Barnet Clinic visit http://www.jnetics.org/screening_and_testing/jnetics_community_screening

 

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